The patient experience of Colchicine Resistant-Familial Mediterranean Fever (cr-FMF)
نویسندگان
چکیده
Patients and methods Patients with cr-FMF or their caregivers (paediatric patients) (N=16) were recruited through rare disease experts and patient support groups. Patients completed a 20 page pre-interview questionnaire and an in-depth 90 minute interview. Complete data (n=14) were quantified with topics focused on symptoms, diagnosis process, treatment experience, treatment needs and impact on wellbeing.
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